Publication Date
3-1-2023
Journal
Journal of Autism and Developmental Disorders
DOI
10.1007/s10803-022-05619-7
PMID
35672615
PMCID
PMC9172988
PubMedCentral® Posted Date
6-7-2022
PubMedCentral® Full Text Version
Post-print
Published Open-Access
yes
Keywords
Humans, Child, Quality of Life, Autism Spectrum Disorder, COVID-19, Surveys and Questionnaires, Mental Health, Caregivers, COVID-19, Autism spectrum disorders, HRQoL, Phelan–McDermid syndrome, Rett Syndrome, SYNGAP1-ID
Abstract
Between July 2020 and January 2021, 230 principal caregivers completed a questionnaire to measure proxy-assessed health-related quality of life outcomes (HRQoL), behavioral outcomes in children with syndromic autism spectrum disorders and COVID-19 induced changes to lifestyle and environments. HRQoL and behavioral outcomes reported earlier during the pandemic were generally worse compared to those reported later. COVID-19 induced reduction to a caregiver's mental health appointments, and hours spent watching TV were associated with decreases in HRQoL and increased the likelihood of problematic behaviors. Increasing time outdoors and time away from digital devices were positively associated with HRQoL and behaviors and might protect children from COVID-19 induced restrictions.
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Community Health Commons, Community Health and Preventive Medicine Commons, COVID-19 Commons, Diseases Commons, Epidemiology Commons, Neurology Commons, Neurosciences Commons, Pediatrics Commons