Faculty, Staff and Student Publications
Publication Date
1-1-2024
Journal
Fetal Diagnosis and Therapy
Abstract
Introduction: Fetal care centers (FCCs) in the USA lack a standardized instrument to measure person-centered care. This study aimed to develop and validate the Person-Centered Care in Fetal Care Centers (PCC-FCC) Scale.
Methods: Initial items were developed based on literature and input from clinicians and former patients. A Delphi study involving 16 experts was conducted to validate the content and construct. Through three rounds of online questionnaires using open-ended questions and Likert scales, consensus on item clarity and relevancy was established. The resulting items were then piloted with former fetal care center patients via a web-based survey. The instrument's reliability and validity were validated using Cronbach's α and exploratory factor analysis, respectively. Concurrent validity was assessed by comparing scores with the Revised Patient Perception of Patient-Centeredness (PPPC-R) Questionnaire.
Results: 258 participants completed the 48-item pilot PCC-FCC survey, categorized into six domains. Factor analysis yielded a 2-factor, 28-item scale. Internal consistency of the final scale had good reliability (α = 0.969). Data supported content, construct, and concurrent validity.
Conclusion: The PCC-FCC Scale is a reliable and valid measure of person-centered care in U.S. FCCs. It can be used to enhance services and begin connecting person-centered care to maternal-child health outcomes.
Keywords
Humans, Patient-Centered Care, Female, Surveys and Questionnaires, Reproducibility of Results, Delphi Technique, Adult, Pregnancy, Prenatal Care, United States, Male, Middle Aged, fetal diagnosis, fetal care center, perinatal care, reproductive health, scale development, Delphi study
DOI
10.1159/000537691
PMID
38325342
PMCID
PMC11147688
PubMedCentral® Posted Date
2-7-2025
PubMedCentral® Full Text Version
Author MSS
Published Open-Access
yes