Faculty, Staff and Student Publications
Publication Date
12-1-2023
Journal
Cancer Causes Control
Abstract
PURPOSE: Community engagement is essential in effective public health programs. This paper illustrates the methods used to engage community in the development of a multi-level implementation intervention to address cancer disparities related to hereditary cancer syndromes.
METHODS: Implementation Mapping (IM), was used to guide the co-creation of an intervention. Key partners were recruited to a 13-member statewide community advisory board (CAB) representing healthcare and community-based organizations. As part of a needs assessment, a 3-round modified Delphi method with the CAB was used to identify implementation outcomes to use in later steps of IM. An anonymous online survey of a validated community engagement measure assessed CAB members' satisfaction with the process.
RESULTS: Using a modified Delphi method as part of the needs assessment of IM, the CAB identified three broad categories of strategies: Changing infrastructure using patient navigation; training and educating patients, navigators and providers; and supporting clinicians in case identification and management. Self-reported satisfaction with the IM and Delphi process was high.
CONCLUSIONS: Implementation Mapping facilitated the use of available evidence, new data, and community engagement to identify strategies to improve the delivery of programs to reduce hereditary cancer disparities. The modified Delphi method was easy to administer in a virtual environment and may be a useful for others in community-engaged research.
Keywords
Humans, Community-Based Participatory Research, Delivery of Health Care, Neoplasms, Community-engaged research, Implementation mapping, Hereditary cancer screening, Community advisory board
DOI
10.1007/s10552-023-01688-w
PMID
37069456
PMCID
PMC10110487
PubMedCentral® Posted Date
4-18-2023
PubMedCentral® Full Text Version
Post-print
Published Open-Access
yes
Included in
Community Health and Preventive Medicine Commons, Health Services Research Commons, Oncology Commons, Public Health Education and Promotion Commons