A Call for an Integrated Approach To Improve Efficiency, Equity and Sustainability in Rare Disease Research in the United States

Authors

Meghan C Halley
Hadley Stevens Smith
Euan A Ashley
Aaron J Goldenberg
Holly K Tabor

Language

English

Publication Date

3-1-2022

Journal

Nature Genetics

DOI

10.1038/s41588-022-01027-w

PMID

35256804

PMCID

PMC9016354

PubMedCentral® Posted Date

9-1-2022

PubMedCentral® Full Text Version

Author MSS

Abstract

To build a more efficient, equitable, and sustainable approach to rare disease research in the United States, we must prioritize integrated research infrastructure and approaches that focus on understanding connections across rare diseases.

Keywords

Health Services Accessibility, Humans, Rare Diseases, United States

Published Open-Access

yes

Recommended Citation

Halley, Meghan C; Smith, Hadley Stevens; Ashley, Euan A; et al., "A Call for an Integrated Approach To Improve Efficiency, Equity and Sustainability in Rare Disease Research in the United States" (2022). Faculty and Staff Publications. 2790.
https://digitalcommons.library.tmc.edu/baylor_docs/2790