Language

English

Publication Date

10-20-2025

Journal

Journal of Medical Genetics

DOI

10.1136/jmg-2025-110681

PMID

40744518

PMCID

PMC12358183

PubMedCentral® Posted Date

7-31-2025

PubMedCentral® Full Text Version

Post-print

Abstract

Background: Inherited retinal diseases (IRDs) are a group of disorders often resulting in progressive vision loss, ultimately leading to blindness. A significant portion of their genetic causes remain unresolved, partly due to undiscovered disease-associated genes or variants. This study aimed to identify novel genetic links to IRDs.

Methods: All patients underwent comprehensive ophthalmological evaluation, including retinal imaging (fundus autofluorescence and macular optical coherence tomography) and electroretinogram testing. Whole exome sequencing and whole genome sequencing were performed on patients with clinically unsolved IRD, and data were analysed using an in-house pipeline to identify causal variants. Subsequently, Sanger sequencing was performed to confirm identified variants.

Results: Three unrelated patients from Europe, Middle East and East Asia were identified with unique late-onset retinal degeneration (Stargardt-like phenotype) associated with biallelic loss-of-function (LoF) variants in C19orf44 (HGNC: 26141), a gene of unknown function. The homozygous variant NM_032207.2:c.549_550del;p.Ser185Profs*2 was identified in two unrelated patients (European and Middle Eastern). Moreover, an East Asian patient had likely compound heterozygous LoF variants (NM_032207.2:c.1168C>T;p.Gln390*/c.976_977del;p.Leu326Lysfs*15).

Conclusions: Our findings establish C19orf44 as a novel disease-causing gene for IRD with Stargardt-like phenotype, expanding the genetic landscape of retinal degeneration.

Keywords

Humans, Retinal Degeneration, Male, Female, Loss of Function Mutation, Middle Aged, Exome Sequencing, Pedigree, Adult, Alleles, Genetic Predisposition to Disease, Tomography, Optical Coherence, Electroretinography, Phenotype, Whole Genome Sequencing, Genetics; Genetics, Medical; Genotype; Ophthalmology

Published Open-Access

yes

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