Language
English
Publication Date
11-17-2025
Journal
Journal of Applied Gerontology
DOI
10.1177/07334648251389300
PMID
41247831
Abstract
Palliative care needs of hospitalized persons living with dementia (PLWD) and their family caregivers remain poorly understood. This mixed-methods study explored caregivers' perspectives on challenges and support needs when hospitalized PLWD received specialist palliative care consultations. Thirty-two caregivers were recruited from two hospitals; 18 completed interviews and surveys, and 14 completed surveys only. Participants were racially and ethnically diverse (19% Black or African American, 34% Latino or Hispanic). Most identified as women (65%) and adult children (56%). Commonly reported challenges included managing health issues (59%), emotional distress (56%), and decision-making (47%). Thematic analysis of interviews revealed three themes: the value of palliative care in navigating end-of-life uncertainty in dementia, uncoordinated and reactive care during hospitalization, and lack of guidance for post-hospital transitions. While caregivers valued palliative care for emotional and decision-making support, findings underscore the need for earlier integration and improved coordination across hospital teams to better support families.
Keywords
care coordination, caregiving, dementia, hospitalization, palliative care
Published Open-Access
yes
Recommended Citation
Kwak, Jung; Chary, Anita; Stayer, Sarah; et al., "Family Caregivers' Perspectives on Challenges and Support Needs in Hospital-Based Palliative Care for Persons Living With Dementia" (2025). Faculty, Staff and Students Publications. 6741.
https://digitalcommons.library.tmc.edu/baylor_docs/6741