Doctor of Nursing Practice Projects

A Policy Analysis of Spinraza: An Orphan Drug for Spinal Muscular Atrophy

A Policy Analysis of Spinraza: An Orphan Drug for Spinal Muscular Atrophy

Brenda M. Cowan, University of Texas Health Science Center Cizik School of Nursing

Description

PURPOSE An examination and evaluation of current policies of private, state, and federal insurance payers regarding approval of Spinraza for use in individual children will lead to recommendations for changes in local payment protocols and organizational involvement related to need for federal policies/regulations/guidelines for Spinraza/UODs for 5q-SMA