Faculty, Staff and Student Publications
Language
English
Publication Date
8-1-2023
Journal
JAMA Network Open
DOI
10.1001/jamanetworkopen.2023.28944
PMID
37581885
PMCID
PMC10427944
PubMedCentral® Posted Date
8-15-2023
PubMedCentral® Full Text Version
Post-print
Abstract
Importance: Latinx people have a high burden of kidney disease but are less likely to receive home dialysis compared to non-Latinx White people. The disparity in home dialysis therapy has not been completely explained by demographic, medical, or social factors.
Objective: To understand the barriers and facilitators to home dialysis therapy experienced by Latinx individuals with kidney failure receiving home dialysis.
Design, setting, and participants: This qualitative study used semistructured interviews with Latinx adults with kidney failure receiving home dialysis therapy in Denver, Colorado, and Houston, Texas, between November 2021 and March 2023. Patients were recruited from home dialysis clinics affiliated with academic medical centers. Of 39 individuals approached, 27 were included in the study. Interviews were audio-recorded, transcribed verbatim, and analyzed using thematic analysis.
Main outcomes and measures: Themes and subthemes regarding barriers and facilitators to home dialysis therapy.
Results: A total of 27 Latinx adults (17 [63%] female and 10 [37%] male) with kidney failure who were receiving home dialysis participated. Themes and subthemes were identified, 3 related to challenges with home dialysis and 2 related to facilitators. Challenges to home dialysis included misinformation and immigration-related barriers to care (including cultural stigma of dialysis, misinformation regarding chronic disease care, and lack of health insurance due to immigration status), limited dialysis education (including lack of predialysis care, no-nephrologist education, and shared decision-making), and maintenance of home dialysis (including equipment issues, lifestyle restrictions, and anxiety about complications). Facilitators to home dialysis included improved lifestyle (including convenience, autonomy, physical symptoms, and dietary flexibility) and support (including family involvement, relationships with staff, self-efficacy, and language concordance).
Conclusions and relevance: Latinx participants in this study who were receiving home dialysis received misinformation and limited education regarding home dialysis, yet were engaged in self-advocacy and reported strong family and clinic support. These findings may inform new strategies aimed at improving access to home dialysis education and uptake for Latinx individuals with kidney disease.
Keywords
Adult, Humans, Male, Female, Hemodialysis, Home, Renal Dialysis, Kidney Failure, Chronic, Kidney Diseases, Renal Insufficiency
Published Open-Access
yes
Recommended Citation
Rizzolo, Katherine; Gonzalez Jauregui, Rebeca; Barrientos, Ileana; et al., "Barriers and Facilitators to Home Dialysis Among Latinx Patients with Kidney Disease" (2023). Faculty, Staff and Student Publications. 1303.
https://digitalcommons.library.tmc.edu/uthmed_docs/1303
Correction
Included in
Diseases Commons, Medical Microbiology Commons, Medical Molecular Biology Commons, Nephrology Commons, Race and Ethnicity Commons
Comments
This article has been corrected. See JAMA Netw Open. 2023 Sep 13;6(9):e2335236.