Faculty, Staff and Student Publications

Language

English

Publication Date

5-15-2025

Journal

Studies in Health Technology and Informatics

DOI

10.3233/SHTI250632

PMID

40380735

Abstract

Patient-facing technologies (PFTs) are essential tools for patient-centered outcome research. The current designs of PFTs need solid theoretical support and face challenges with maintenance and sustainability. This paper identifies PFT features and theoretical frameworks that support patient engagement in cancer care. Six prevailing PFT features - feedback & alert, a summary of entries, education materials, aggregated review, dedicated staff, and reminders - were identified in the primary literature, and five theoretical frameworks were adopted to guide the design and evaluation of 20 PFTs. Further research into user-centered design, personalization, and social context in PFT development is recommended to connect system design, maintenance, and sustainability. This theory-driven approach could enhance patient-reported outcomes in patient-centered research by engaging diverse patient populations and addressing their needs.

Keywords

Humans, Patient-Centered Care, Patient Participation, Neoplasms, User-Centered Design, Patient Reported Outcome Measures, Patient-facing technology, design, evaluation, framework

Published Open-Access

yes

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