Language
English
Publication Date
12-1-2025
Journal
Arthritis Care & Research
DOI
10.1002/acr.25603
PMID
40654136
PMCID
PMC12750136
PubMedCentral® Posted Date
10-30-2025
PubMedCentral® Full Text Version
Post-print
Abstract
Objective: We assessed whether shared decision-making (SDM) and patient acceptability, feasibility, and overall satisfaction with a computerized patient decision aid (PtDA) for patients with systemic lupus erythematosus (SLE) differs by PtDA setting, modality, and the viewing experience.
Methods: Patients with SLE were invited to view a self-administered computerized SLE PtDA during regular clinic visits at 15 rheumatology clinics in an implementation trial. Patients completed a survey that included SDM measures including the decision conflict scale (DCS), Preparation for Decision Making (PDM) scale, and CollaboRATE scale, and we measured perceived patient acceptability, feasibility, and satisfaction. Patients viewed the SLE PtDA in two settings/places, in clinic or at home (telemedicine visits), using one of three modalities, a touchpad computer, smart phone, or computer (desktop or laptop computer). We also assessed the effects of interruptions while viewing the PtDA and incomplete viewings.
Results: We had a cohort of 813 patients with SLE (43% of 1,895 total) who completed the PtDA modality and setting questions, which were added midway after the COVID-19 pandemic started. In a multivariable-adjusted logistic regression analysis, the setting or modality of viewing the SLE PtDA were not associated with SDM or patient outcomes except the association of place of viewing with feasibility. We noted important significant associations of interruption while viewing the SLE PtDA with lower feasibility, acceptability, and PDM and DCS scores and incomplete viewing of the SLE PtDA with worse PDM and DCS scores.
Conclusion: The SLE PtDA was effective regardless of setting and modality of delivery. Uninterrupted and complete viewing of the SLE PtDA is desirable for better SDM and higher acceptability.
Keywords
Adult, Aged, Female, Humans, Male, Middle Aged, Cohort Studies, COVID-19, Decision Making, Shared, Decision Support Techniques, Feasibility Studies, Lupus Erythematosus, Systemic, Patient Participation, Patient Reported Outcome Measures, Patient Satisfaction, Telemedicine
Published Open-Access
yes
Recommended Citation
Jasvinder A Singh, Mark Beasley, and Larry R Hearld, "Where, How, and How Much? A Multicenter Cohort Study of the Relationship Across Lupus Decision-Aid Modality, Place of Administration, Interruption and Viewing Completeness, and Patient-Reported Outcomes" (2025). Faculty, Staff and Students Publications. 6770.
https://digitalcommons.library.tmc.edu/baylor_docs/6770
Graphical Abstract