Security and Privacy when Applying FAIR Principles to Genomic Information

Authors

Jaime Delgado
Silvia Llorente

Publication Date

11-23-2020

Journal

JAMA Oncology

Abstract

Making data Findable, Accessible, Interoperable and Reusable (FAIR) is a good approach when data needs to be shared. However, security and privacy are still critical aspects. In the FAIRification process, there is a need both for de-identification of data and for license attribution. The paper analyses some of the issues related to this process when the objective is sharing genomic information. The main results are the identification of the already existing standards that could be used for this purpose and how to combine them. Nevertheless, the area is quickly evolving and more specific standards could be specified.

Keywords

Computer Security, Genomics, Privacy

Comments

Supplementary Material

PMID: 37227736

DOI

10.1001/jamaoncol.2023.0998

PMID

37227736

PMCID

PMC10214180

PubMedCentral® Posted Date

May 2023

PubMedCentral® Full Text Version

Post-print

Published Open-Access

yes