Selecting Patient-Reported Outcome Measures For A Patient-Facing Technology

Authors

Priyank Raj
Youmin Cho
Yun Jiang
Yang Gong

Publication Date

12-1-2023

Journal

JAMIA Open

Abstract

OBJECTIVE: This article provides insight into our process and considerations for selecting patient-reported outcome measures (PROMs) designed for self-reporting symptoms and quality-of-life among breast cancer (BCA) patients undergoing oral anticancer agent treatment via a patient-facing technology (PFT) platform.

METHODS: Following established guidelines, we conducted a thorough assessment of a specific set of PROMs, comparing their content to identify the most suitable options for studying BCA patients.

RESULTS: We recommend utilizing the combination of EORTC QLQ-C30 + EORTC QLQ-BR45 as the preferred instrument, especially when developing a dedicated "breast cancer-only" application.

DISCUSSION: When developing and maintaining a dashboard for a PFT platform that includes multiple cancer types, it is important to consider the feasibility of interface design and workload. To achieve this, we recommend using PRO-CTCAE+PROMIS 10 GH for the PFT. Moreover, it is important to consider adding ad hoc items to complement the chosen PROM(s).

CONCLUSION: This article describes our efforts to identify PROMs for self-reported data while considering patient and developer burdens, providing guidance to PFT developers facing similar challenges in PROM selection.

Keywords

patient-reported outcome measure, breast cancer, patient-facing technology, symptoms, quality of life

Comments

Supplementary Materials

DOI

10.1093/jamiaopen/ooad104

PMID

38098479

PMCID

/PMC10719077

PubMedCentral® Posted Date

December 2023

PubMedCentral® Full Text Version

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