Center for Medical Ethics and Health Policy Staff Publications
The Center for Medical Ethics and Health Policy researches and influences policy on today’s most pressing ethical issues.
The center focuses on conducting cutting-edge multidisciplinary research on perennial and emerging ethical issues arising in clinical practice and in biomedical research in a changing healthcare environment. Our research informs our teaching, clinical practice and contributions to the development of health and science policy at the local, national and international levels.
Our staff is dedicated to creating a shared, sustainable, intellectual environment in which all stakeholders can critically reflect on and respond to ethical challenges in healthcare and biomedical research.
Submissions from 2023
Optimising Clinical Care Through CDH1-Specific Germline Variant Curation: Improvement of Clinical Assertions and Updated Curation Guidelines, Xi Luo, Jamie L Maciaszek, Bryony A Thompson, et al.
Parents’ Decision-Making Regarding Whether to Receive Adult-Onset Only Genetic Findings for Their Children: Findings From the BabySeq Project, Stacey Pereira, Amanda M Gutierrez, Jill Oliver Robinson, et al.
Participant Perceptions of Changes in Psychosocial Domains Following Participation in an Adaptive Deep Brain Stimulation Trial, Amanda R Merner, Kristin Kostick-Quenet, Tiffany A Campbell, et al.
Patterns of Co-Occurring Birth Defects In Children With Anotia and Microtia, Jeremy M Schraw, Renata H Benjamin, Charles J Shumate, et al.
Payer Reimbursement Practices and Incentives for Improving Interpretation of Germline Genetic Testing, Patricia Deverka, Janis Geary, Charles Mathews, et al.
Payer Reimbursement Practices and Incentives for Improving Interpretation of Germline Genetic Testing, Patricia Deverka, Janis Geary, Charles Mathews, et al.
Pediatric Acute Liver Failure Secondary to Autoimmune Hepatitis in an Infant With Thrombocytopenia-Absent Radius (TAR) Syndrome: A Case Report, Rebecca Mercedes, Kalyani Patel, Henry Shiau, et al.
Pediatric HIV+ Kaposi Sarcoma Exhibits Clinical, Virological, and Molecular Features Different From the Adult Disease, Carolina Caro-Vegas, Alice Peng, Angelica Juarez, et al.
Pediatric Rhabdomyosarcoma Incidence and Survival in the United States: An Assessment of 5656 Cases, 2001–2017, Matthew T McEvoy, David A Siegel, Shifan Dai, et al.
Pertuzumab, Trastuzumab, and an Aromatase Inhibitor for HER2-Positive and Hormone Receptor-Positive Metastatic or Locally Advanced Breast Cancer: PERTAIN Final Analysis, Grazia Arpino, Juan de la Haba Rodríguez, Jean-Marc Ferrero, et al.
Physician-Investigator, Research Coordinator, and Patient Perspectives on Dual-Role Consent in Oncology: A Qualitative Study, Stephanie R Morain, Dorit Barlevy, Steven Joffe, et al.
Policy Options to Facilitate Cancer Genomic Variant Data Sharing: Outcomes of a Modified Policy Delphi, Jill O Robinson, Amira Daoud, Janis Geary, et al.
Polymorphisms in the Nonhomologous End-joining DNA Repair Pathway are Associated with HPV Integration in Cervical Dysplasia, Jennifer M Geris, E Susan Amirian, Deborah A Marquez-Do, et al.
Posoleucel, an Allogeneic, Off-the-Shelf Multivirus-Specific T-Cell Therapy, for the Treatment of Refractory Viral Infections in the Post-HCT Setting, Thomas Pfeiffer, Ifigeneia Tzannou, Mengfen Wu, et al.
Predictors and Moderators of Treatment Outcomes for Anxious Children Randomized to Computer-Assisted Cognitive Behavioral Therapy or Standard Community Care, Orri Smárason, Andrew G Guzick, Wayne K Goodman, et al.
Predictors of Success In Establishing Orthotopic Patient-Derived Xenograft Models of Triple Negative Breast Cancer, Gloria V Echeverria, Shirong Cai, Yizheng Tu, et al.
Pre-Treatment Inflamed Tumor Immune Microenvironment Is Associated With Folfirinox Response in Pancreatic Cancer, Zachary Gao, Sung Wook Kang, Derek Erstad, et al.
Prevalence and descriptive epidemiology of Turner syndrome in the United States, 2000-2017: A report from the National Birth Defects Prevention Network, Bailey A Martin-Giacalone, Angela E Lin, Sonja A Rasmussen, et al.
Professional Virtue of Civility and the Responsibilities of Medical Educators and Academic Leaders, Laurence B McCullough, John Coverdale, and Frank A Chervenak
Promoting OCD WEllness and Resilience (Power) Study: Rationale, Design, and Methods, Jessica D Leuchter, Minjee Kook, Daniel A Geller, et al.
Proteogenomic Approaches for the Identification of NF1/Neurofibromin-depleted Estrogen Receptor-positive Breast Cancers for Targeted Treatment, Beom-Jun Kim, Ze-Yi Zheng, Jonathan T Lei, et al.
Psychometric Properties of the Revised Children’s Anxiety and Depression Scale (RCADS) for Autistic Youth Without Co-Occurring Intellectual Disability, Nasim Khalfe, Amy R Goetz, Erika S Trent, et al.
Psychometric Properties of the Turkish Version of the Children's Saving Inventory in a Clinical Sample, Mehmet Akif Akıncı, Bahadır Turan, Ali Çakır, et al.
Public Mental Health During and After the SARS-CoV-2 Pandemic: Opportunities for Intervention, Melissa M Karnaze, Brent M Kious, Lindsay Z Feuerman, et al.
Rare Variant Enrichment Analysis Supports GREB1L as a Contributory Driver Gene in the Etiology of Mayer-Rokitansky-Küster-Hauser Syndrome, Angad Jolly, Haowei Du, Christelle Borel, et al.