Center for Medical Ethics and Health Policy Staff Publications

 

The Center for Medical Ethics and Health Policy researches and influences policy on today’s most pressing ethical issues.

The center focuses on conducting cutting-edge multidisciplinary research on perennial and emerging ethical issues arising in clinical practice and in biomedical research in a changing healthcare environment. Our research informs our teaching, clinical practice and contributions to the development of health and science policy at the local, national and international levels.

Our staff is dedicated to creating a shared, sustainable, intellectual environment in which all stakeholders can critically reflect on and respond to ethical challenges in healthcare and biomedical research.

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Submissions from 2023

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Epigenomic Signature of Major Congenital Heart Defects in Newborns With Down Syndrome, Julia S Mouat, Shaobo Li, Swe Swe Myint, et al.

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Estradiol Mediates Colonic Epithelial Protection In Aged Mice After Stroke and Is Associated With Shifts In The Gut Microbiome, Juneyoung Lee, Pedram Peesh, Victoria Quaicoe, et al.

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Ethical Hazards of Health Data Governance in the Metaverse, Kristin Kostick-Quenet and Vasiliki Rahimzadeh

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Ethics Education for Healthcare Professionals in the Era of ChatGPT and Other Large Language Models: Do We Still Need It?, Vasiliki Rahimzadeh, Kristin Kostick-Quenet, Jennifer Blumenthal Barby, et al.

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Ethnic-Specific Predictors of Neurotoxicity Among Patients With Pediatric Acute Lymphoblastic Leukemia After High-Dose Methotrexate, Rachel D Harris, Melanie Brooke Bernhardt, Mark C Zobeck, et al.

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Evaluating the Proportion of Isolated Cases Among a Spectrum of Birth Defects in a Population-Based Registry, Peter H Langlois, Lisa Marengo, Philip J Lupo, et al.

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Exome-Wide Assessment of Isolated Biliary Atresia: A Report From the National Birth Defects Prevention Study Using Child-Parent Trios and a Case-Control Design To Identify Novel Rare Variants, Pagna Sok, Aniko Sabo, Lynn M Almli, et al.

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Expanding Narrative Medicine through the Collaborative Construction and Compelling Performance of Stories, Woods Nash, Mgbechi Erondu, and Andrew Childress

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External Validation of a Novel Electronic Risk Score for Cancer-Associated Thrombosis in a Comprehensive Cancer Center, Ang Li, Giordana De Las Pozas, Clark R Andersen, et al.

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Extracorporeal Membrane Oxygenation Characteristics and Outcomes in Children and Adolescents With COVID-19 or Multisystem Inflammatory Syndrome Admitted to U.S. ICUs, Melania M Bembea, Laura L Loftis, Ravi R Thiagarajan, et al.

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“Extremely Slow and Capricious”: A Qualitative Exploration of Genetic Researcher Priorities in Selecting Shared Data Resources, M Grace Trinidad, Kerry A Ryan, Chris D Krenz, et al.

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Factors Associated With Internalizing and Externalizing Symptoms in a Clinical Sample of Youth With Misophonia, Gabrielle M Armstrong, Rebecca L Greenberg, Orri Smárason, et al.

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Factors Associated With Nonsyndromic Anotia and Microtia, Texas, 1999–2014, Jeremy M Schraw, J P Woodhouse, Renata H Benjamin, et al.

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Factors, Enablers and Challenges for COVID-19 Vaccine Development, Jean-Louis Excler, Melanie Saville, Lois Privor-Dumm, et al.

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Feasibility and Preclinical Efficacy of CD7-Unedited CD7 Car T Cells for T Cell Malignancies, Norihiro Watanabe, Feiyan Mo, Rong Zheng, et al.

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Figg at 5: An Update on U.S. Public Perspectives on Forensic Investigative Genetic Genealogy Five Years After Its Introduction to Criminal Investigations, Sophie L Schott, April Adams, Ryan J Dougherty, et al.

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Flow Cytometric Assessment of Leukemia-Associated Monocytes in Childhood B-cell Acute Lymphoblastic Leukemia Outcome, Gloria P Contreras Yametti, Nikki A Evensen, Jennifer M Schloss, et al.

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Framing the Family: A Qualitative Exploration of Factors That Shape Family-Level Experience of Pediatric Genomic Sequencing, Hadley Stevens Smith, Emily S Bonkowski, Madison R Hickingbotham, et al.

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Framing the Family: A Qualitative Exploration of Factors That Shape Family-Level Experience of Pediatric Genomic Sequencing, Hadley Stevens Smith, Emily S Bonkowski, Madison R Hickingbotham, et al.

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Fresh Takes on Five Health Data Sharing Domains: Quality, Privacy, Equity, Incentives, and Sustainability, Christi J Guerrini, Mary A Majumder, Jill O Robinson, et al.

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Functional Response to a Microbial Synbiotic in the Gastrointestinal System of Children: A Randomized Clinical Trial, Braden T Tierney, James Versalovic, Alessio Fasano, et al.

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Functional Screening of Lysosomal Storage Disorder Genes Identifies Modifiers of Alpha-Synuclein Neurotoxicity, Meigen Yu, Hui Ye, Ruth B De-Paula, et al.

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Gastrointestinal Infections Modulate the Risk for Insulin Autoantibodies as the First-Appearing Autoantibody in the TEDDY Study, Maria Lönnrot, Kristian F Lynch, Marian Rewers, et al.

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Genetics and Pathogenesis of Parkinson's Syndrome, Hui Ye, Laurie A Robak, Meigen Yu, et al.

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Genome-Wide Analyses Characterize Shared Heritability Among Cancers and Identify Novel Cancer Susceptibility Regions, Sara Lindström, Lu Wang, Helian Feng, et al.