Center for Medical Ethics and Health Policy Staff Publications

Center for Medical Ethics and Health Policy Staff Publications

 

The Center for Medical Ethics and Health Policy researches and influences policy on today’s most pressing ethical issues.

The center focuses on conducting cutting-edge multidisciplinary research on perennial and emerging ethical issues arising in clinical practice and in biomedical research in a changing healthcare environment. Our research informs our teaching, clinical practice and contributions to the development of health and science policy at the local, national and international levels.

Our staff is dedicated to creating a shared, sustainable, intellectual environment in which all stakeholders can critically reflect on and respond to ethical challenges in healthcare and biomedical research.

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Submissions from 2026

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Access to Digital Health Technologies: Personalized Framework and Global Perspectives, Sanjiv M Narayan, Mina K Chung, Demilade Adedinsewo, et al.

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An Integrated Cardiometabolic Genetic Testing Program in a Predominantly Hispanic Population Within a Community Setting, Bo Yuan, Layla A Abushamat, Stacey Pereira, et al.

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Anything but Endo: Diagnostic Buck-Passing in Endometriosis Diagnosis, Rita Dexter, Megan Kitts, Heather Welty, et al.

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Artificial Intelligence in Medical Ethics Education: A Descriptive Study of Eight Models in Multiple Choice Question Generation, John Obeid, Christopher Bobier, Alex Gillham, et al.

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Can I Get a Witness? The Ethical Dimensions of Family Presence in Patient Suffering, Jennifer Blumenthal-Barby, Trevor M Bibler, Holland Kaplan, et al.

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Characterizing Core Outcomes of Responsible Stewardship for Human Genomic Data in the Cloud, Vasiliki Rahimzadeh, Bronwyn Walsh, Heidi L Rehm, et al.

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Clinicians’ Views on a Patient Decision Aid for Deep Brain Stimulation in Parkinson’s Disease, Hillary S King, Jennifer Blumenthal-Barby, Benjamin H Levi, et al.

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Decision-Making Criteria in Polygenic Embryo Screening: A Survey of Reproductive Medicine Physicians, Rémy A Furrer, Aayushi Gandhi, Dorit Barlevy, et al.

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Designing Inclusive Newborn Sequencing Research: Insights From Parents in Underrepresented Communities, Maya C Del Rosario, Sheyenne A Walmsley, Barbara W Harrison, et al.

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Differences Between Government, Consortium, and Private Database Stewards Impacting the Genomic Data Market: A Survey of U.S. Academic Genetic Researchers., Amanda K Greene, J Denard Thomas, Kaitlyn Jaffe, et al.

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Elective Genomic Sequencing for Adults in Research, Clinical and Commercial Contexts, Michael D Linderman, Sophia M Adelson, Tala M Berro, et al.

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Ethical Controversies in Organ Procurement: A National Survey on Public Perceptions of Thoracoabdominal Normothermic Regional Perfusion, Trevor M Bibler, Jill Oliver Robinson, Adam Omelianchuk, et al.

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Exploring the Ethical and Practical Considerations of Artificial Intelligence in Real-World Health Care Settings: Stakeholder Focus Group Study, Carmen Wendy Ulizio, Devika Dua, Naya Meenkashi Mukul, et al.

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Identifying and Addressing Problematic Studies in Allergy and Asthma Research: A Commentary, Alexandro W L Chu, Gordon H Guyatt, Jason W Busse, et al.

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Imagining Genomics and Population Health in 2050: Anticipating Future Research, Policy, and Governance Needs, Bartha Maria Knoppers, Yann Joly, Ma Apos N H Zawati, et al.

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Interdisciplinary, Delphi-Driven Consensus Guidelines on the Use of Intravenous Ketamine Infusions for Depressive Disorders From the American Society of Ketamine Physicians, Psychotherapists, and Practitioners (ASKP3), David S Mathai, Madeleine Cluck, Amna M Aslam, et al.

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Navigating Undone Science: The Search for Adequate Endometriosis Care, Heather Welty and Melanie Jeske

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Organ Chips and Translational Research: Identifying and Examining New Ethical Issues, Melanie Jeske

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Patient Perspectives on Psychiatric Polygenic Risk Scores in Reproductive Decision-Making and Polygenic Embryo Screening., Lauren A Ginn, Amanda R Merner, Page M Trotter, et al.

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Perceived Sensitivity of Sensor-Based Digital Health Data: Qualitative Interview Study, Christine Deeney, Anika Sonig, Meghan E Hurley, et al.

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Post-Dobbs Realities: Ethical Imperatives for Data Transparency and Trust in Maternal Health Care, Faith E Fletcher, Sophie L Schott, Kelley Akhiemokhali, et al.

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Public Attitudes Toward Cascade Genetic Screening in the United States, Hadley Stevens Smith, Emilie S Zoltick, Madison R Hickingbotham, et al.

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Putting the L in ELSI: Legal Methods for Bioethics Research, Anya E R Prince, Benjamin Berkman, Donald Ford, et al.

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Reported Safety Practices of Publicly Advertised Psychedelic Retreats, Amy L McGuire, Logan Neitzke-Spruill, Jill O Robinson, et al.

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Rethinking Ethics for an Era of Trusted Computational Tools, Kristin M Kostick-Quenet, Meghan Hurley, John Herrington, et al.