Center for Medical Ethics and Health Policy Staff Publications

 

The Center for Medical Ethics and Health Policy researches and influences policy on today’s most pressing ethical issues.

The center focuses on conducting cutting-edge multidisciplinary research on perennial and emerging ethical issues arising in clinical practice and in biomedical research in a changing healthcare environment. Our research informs our teaching, clinical practice and contributions to the development of health and science policy at the local, national and international levels.

Our staff is dedicated to creating a shared, sustainable, intellectual environment in which all stakeholders can critically reflect on and respond to ethical challenges in healthcare and biomedical research.

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Submissions from 2025

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Ethical Governance for Genomic Data Science in the Cloud, Vasiliki Rahimzadeh, Sarah C Nelson, Adrian Thorogood, et al.

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Examining Treatment Options in Youth With Major Depressive Disorder: Observations From the TX-YDSRN Registry Study, Emine Rabia Ayvaci, Karabi Nandy, Ryan Becker, et al.

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Factors Associated with Adolescents' Self-Efficacy to Meet with their Health Care Provider Alone, Albert C Hergenroeder, Blanca Sanchez-Fournier, Cassandra Enzler, et al.

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FIGG at 5: An Update on U.S. Public Perspectives on Forensic Investigative Genetic Genealogy Five Years After Its Introduction to Criminal Investigations, Christi J Guerrini, Jill O Robinson, Mohamed I Elsaid, et al.

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Genome-Wide Analyses Identify 30 Loci Associated With Obsessive-Compulsive Disorder, Nora I Strom, Zachary F Gerring, Marco Galimberti, et al.

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Germline Pathogenic DROSHA Variants Are Linked to Pineoblastoma and Wilms Tumor Predisposition, Peter N Fiorica, Lisa Golmard, Jung Kim, et al.

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Governance of Polygenic Embryo Screening: A Qualitative Study on the Perspectives of Clinicians and Patients, Jason Bach, Jonathan Frumovitz, Dorit Barlevy, et al.

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Gut Microbial Changes Associated With Obesity in Youth With Type 1 Diabetes, Heba M Ismail, Dimuthu Perera, Rabindra Mandal, et al.

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Haploinsufficiency of ITSN1 Is Associated With a Substantial Increased Risk of Parkinson’s Disease, Thomas P Spargo, Chloe F Sands, Isabella R Juan, et al.

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"Holy Cow, Where do I Sign up?" Attitudes of Military Veterans Toward Epigenomic Biomarker Toxic Exposure Testing, Stacey Pereira, Calvin Apodaca, Kyle Slominski, et al.

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How Do Parents Decide on Genetic Testing in Pediatrics? A Systematic Review, Elena Sophia Doll, Seraina Petra Lerch, Katja Maria Schmalenberger, et al.

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Impact of Antiparasitic Therapy on Cardiovascular Outcomes in Chronic Chagas Disease. A Systematic Review and Meta-Analysis, Anis Rassi, Alyssa Grimshaw, Ashwin Sarwal, et al.

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Improving Individualized Rhabdomyosarcoma Prognosis Predictions Using Somatic Molecular Biomarkers, Mark Zobeck, Javed Khan, Rajkumar Venkatramani, et al.

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Incidence and Survival of Children and Adolescents With Wilms Tumor, United States, 2001-2020, Andres F Espinoza, Ekene Onwuka, David A Siegel, et al.

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International Society for Cell & Gene Therapy Expanded Access Working Group Position Paper: Key Considerations to Support Equitable and Ethical Expanded Access to Investigational Cell- and Gene-Based Interventions, Elena Maryamchik, Laertis Ikonomou, Beth E Roxland, et al.

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Investigative Genetic Genealogy Practices Warranting Policy Attention: Results of a Modified Policy Delphi, Christi J Guerrini, Louiza Kalokairinou, Jill O Robinson, et al.

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Joint Analysis of the nPOD-Virus Group Data: The Association of Enterovirus With Type 1 Diabetes Is Supported by Multiple Markers of Infection in Pancreas Tissue, Sarah J Richardson, Teresa Rodriguez-Calvo, Jutta E Laiho, et al.

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Longitudinal Multi-Omics in Alpha-Synuclein Drosophila Model Discriminates Disease- From Age-Associated Pathologies in Parkinson’s Disease, Justin Moore, Timothy Wu, Justin Dhindsa, et al.

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Longitudinal Phage-Bacteria Dynamics in the Early Life Gut Microbiome, Michael J Tisza, Richard E Lloyd, Kristi Hoffman, et al.

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Maternal Loss of Mouse Nlrp2 Alters the Transcriptome and DNA Methylome in Gv Oocytes and Impairs Zygotic Genome Activation in Embryos, Zahra Anvar, Michael D Jochum, Imen Chakchouk, et al.

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Methadone for Critically Ill Patients Under Mechanical Ventilation in the Intensive Care Unit: A Systematic Review, Sérgio Martins Pereira, Megan Abbott, João Francisco Figueiredo Marcondes Ferraz, et al.

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Moving Beyond Simplistic Research Design in Health Professions Education: What a One-Group Pretest-Posttest Design Will Not Prove, S Beth Bierer, Gary Beck Dallaghan, Nicole J Borges, et al.

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Multiscale Modeling of Drug-Induced Liver Injury From Organ to Lobule, Alon Malka-Markovitz, Stelian Camara Dit Pinto, Mohammed Cherkaoui, et al.

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Navigating Your Us Bioscience Career Into the 2030s, Peter J Hotez

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Ocular Phenotyping of Knockout Mice Identifies Genes Associated With Late Adult Retinal Phenotypes, Abraham Hang, Andy Shao, Michael Shea, et al.