Center for Medical Ethics and Health Policy Staff Publications
The Center for Medical Ethics and Health Policy researches and influences policy on today’s most pressing ethical issues.
The center focuses on conducting cutting-edge multidisciplinary research on perennial and emerging ethical issues arising in clinical practice and in biomedical research in a changing healthcare environment. Our research informs our teaching, clinical practice and contributions to the development of health and science policy at the local, national and international levels.
Our staff is dedicated to creating a shared, sustainable, intellectual environment in which all stakeholders can critically reflect on and respond to ethical challenges in healthcare and biomedical research.
Submissions from 2024
Health Equity Innovation in Precision Medicine: Data Stewardship and Agency To Expand Representation in Clinicogenomics, Patrick J Silva, Vasiliki Rahimzadeh, Reid Powell, et al.
Heterozygous MAP3K20 Variants Cause Ectodermal Dysplasia, Craniosynostosis, Sensorineural Hearing Loss, and Limb Anomalies, Daniel Brooks, Elizabeth Burke, Sukyeong Lee, et al.
High Clinical Exome Sequencing Diagnostic Rates and Novel Phenotypic Expansions for Nonisolated Microphthalmia, Anophthalmia, and Coloboma, Bhavana Kunisetty, Bailey A Martin-Giacalone, Xiaonan Zhao, et al.
How Do Parents Decide on Genetic Testing in Pediatrics? A Systematic Review, Hadley Stevens Smith, Bethany Zettler, Casie A Genetti, et al.
How to Design Equitable Digital Health Tools: A Narrative Review of Design Tactics, Case Studies, and Opportunities, Amy Bucher, Beenish M Chaudhry, Jean W Davis, et al.
Human Platelet Lysate Enhances In Vivo Activity of Car-Vδ2 T Cells by Reducing Cellular Senescence and Apoptosis, Feiyan Mo, Chiou-Tsun Tsai, Rong Zheng, et al.
IGG in the Trenches: Results of an In-Depth Interview Study on the Practice, Politics, and Future of Investigative Genetic Genealogy, Christi J Guerrini, Whitney Bash Brooks, Jill O Robinson, et al.
Il-12 Encoding oNDV Synergizes With Car-T Cells in Orthotopic Models of Non-small Cell Lung Cancer, Amanda Rosewell Shaw, Daisuke Morita, Caroline E Porter, et al.
Immunopeptidomic MHC-I Profiling and Immunogenicity Testing Identifies Tcj2 as a New Chagas Disease mRNA Vaccine Candidate, Leroy Versteeg, Rakesh Adhikari, Gonteria Robinson, et al.
Impact of Efavirenz on Hormone-Positive Breast Cancer Survival in Women Living With HIV, Arthur T Johnson, Taolo Ntloedibe, Jose Euberto Mendez Reyes, et al.
Implementation of a Dyadic Nomenclature for Monogenic Diseases, Courtney Thaxton, Leslie G Biesecker, Marina DiStefano, et al.
Implementing and Assessing Climate Change Education in a Pediatrics Residency Curriculum, Mark McShane, Shelley Kumar, and Linessa Zuniga
Incipient Clonal Hematopoiesis Is Accelerated Following CD30.CAR-T Therapy, Chiraag D Kapadia, Gerardo Rosas, Sachin G Thakkar, et al.
Inflammation Mediated by Gut Microbiome Alterations Promotes Lung Cancer Development and an Immunosuppressed Tumor Microenvironment, Zahraa Rahal, Yuejiang Liu, Fuduan Peng, et al.
Insights From Social Media Into Public Perspectives on Investigative Genetic Genealogy, Sara Huston, Diana Madden, Andrea Villanes, et al.
Investigating the Roles and Responsibilities of Institutional Signing Officials After Data Sharing Policy Reform for Federally Funded Research in the United States: National Survey, Jinyoung Baek, Jonathan Lawson, and Vasiliki Rahimzadeh
Knowledge, Attitudes, and Concerns About Psilocybin and Mdma As Novel Therapies Among U.S. Healthcare Professionals, Erin Wang, David S Mathai, Natalie Gukasyan, et al.
Langerhans Cell Histiocytosis in Children Born After Assisted Reproductive Technology, Carrie L Williams, Kathryn J Bunch, Charles Stiller, et al.
Large-Scale Application of ClinGen-InSiGHT APC-Specific ACMG/AMP Variant Classification Criteria Leads to Substantial Reduction in VUS, Xiaoyu Yin, Marcy Richardson, Andreas Laner, et al.
Large-Scale Genotype Prediction From RNA Sequence Data Necessitates a New Ethical and Policy Framework, Mary A Majumder, Jeffrey T Leek, Kasper D Hansen, et al.
Latin American Trans-ancestry INitiative for OCD Genomics (Latino): Study Protocol, James J Crowley, Carolina Cappi, Marcos E Ochoa-Panaifo, et al.
Law Enforcement Use of Genetic Genealogy Databases in Criminal Investigations: Nomenclature, Definition and Scope, Oliver M Tuazon, Ray A Wickenheiser, Ricky Ansell, et al.
Law Enforcement Use of Genetic Genealogy Databases in Criminal Investigations: Nomenclature, Definition and Scope, Oliver M Tuazon, Ray A Wickenheiser, Ricky Ansell, et al.
Lethal Phenotypes in Mendelian Disorders, Pilar Cacheiro, Samantha Lawson, Ignatia B Van den Veyver, et al.
Measuring Perceived Utility of Genomic Sequencing: Development and Validation of the GENEtic Utility (GENE-U) Scale for Pediatric Diagnostic Testing, Hadley Stevens Smith, Caryn Kseniya Rubanovich, Jill Oliver Robinson, et al.