Center for Medical Ethics and Health Policy Staff Publications
The Center for Medical Ethics and Health Policy researches and influences policy on today’s most pressing ethical issues.
The center focuses on conducting cutting-edge multidisciplinary research on perennial and emerging ethical issues arising in clinical practice and in biomedical research in a changing healthcare environment. Our research informs our teaching, clinical practice and contributions to the development of health and science policy at the local, national and international levels.
Our staff is dedicated to creating a shared, sustainable, intellectual environment in which all stakeholders can critically reflect on and respond to ethical challenges in healthcare and biomedical research.
Submissions from 2024
Expanding a Behavioral View on Digital Health Access: Drivers and Strategies to Promote Equity, Maura M Kepper, Lauren A Fowler, Isabelle S Kusters, et al.
Exploring Latent Clusters in Pediatric OCD Based on Symptoms, Severity, Age, Gender, and Comorbidity, Orri Smárason, Robert R Selles, Davíð R M A Højgaard, et al.
Families’ Experiences Accessing Care After Genomic Sequencing in the Pediatric Cancer Context: “It’s Just Been a Big Juggle”, Blake Vuocolo, Amanda M Gutierrez, Jill O Robinson, et al.
Family Accommodation in Children and Adolescents With Misophonia, Eric A Storch, Andrew G Guzick, Johann D'Souza, et al.
First interim results from FINE-REAL: a prospective, non-interventional, phase 4 study providing insights into the use and safety of finerenone in a routine clinical settingFirst Interim Results From Fine-Real: A Prospective, Non-interventional, Phase 4 Study Providing Insights Into the Use and Safety of Finerenone in a Routine Clinical Setting, Susanne B Nicholas, Ricardo Correa-Rotter, Nihar R Desai, et al.
Folate Metabolism and Risk of Childhood Acute Lymphoblastic Leukemia: A Genetic Pathway Analysis from the Childhood Cancer and Leukemia International Consortium, Catherine Metayer, Logan G Spector, Michael E Scheurer, et al.
Gambian Mothers Lack Obstetric Danger Sign Knowledge, But Educational Intervention Shows Promise, Kara Shannon, Jocelyn Burridge, Brodus Franklin, et al.
Generating Clinical-Grade Gene-Disease Validity Classifications Through the ClinGen Data Platforms, Matt W Wright, Courtney L Thaxton, Tristan Nelson, et al.
Gene-Specific Acmg/Amp Classification Criteria for Germline Apc Variants: Recommendations From the ClinGen InSiGHT Hereditary Colorectal Cancer/Polyposis Variant Curation Expert Panel\, Isabel Spier, Xiaoyu Yin, Marcy Richardson, et al.
Genetic Researchers' Use of and Interest in Research With Diverse Ancestral Groups, Kaitlyn Jaffe, Amanda K Greene, Luyun Chen, et al.
Genetic Variants in Canonical Wnt Signaling Pathway Associated With Pediatric Immune Thrombocytopenia, Taylor Olmsted Kim, Jennifer M Geris, Jonathan M Flanagan, et al.
Genome-Derived Ampullary Adenocarcinoma Classifier and Postresection Prognostication, Brett L Ecker, Kenneth Seier, Austin M Eckhoff, et al.
Genomic Sequencing Research in Pediatric Cancer Care: Decision Making, Attitudes, and Perceived Utility Among Adolescents and Young Adults and Their Parents, Amanda M Gutierrez, Jill O Robinson, Hadley S Smith, et al.
Germline Genetic Testing and Survival Outcomes Among Children With Rhabdomyosarcoma: A Report From the Children's Oncology Group, Bailey A Martin-Giacalone, He Li, Michael E Scheurer, et al.
Germline Mutations in a G Protein Identify Signaling Cross-Talk in T Cells, Hyoungjun Ham, Huie Jing, Ian T Lamborn, et al.
Governing With Public Engagement: An Anticipatory Approach to Human Genome Editing, Dorit Barlevy, Eric Juengst, Jeffrey Kahn, et al.
Gut Epithelial Interleukin-17 Receptor a Signaling Can Modulate Distant Tumors Growth Through Microbial Regulation, Vidhi Chandra, Le Li, Olivereen Le Roux, et al.
Gut Microbiota and Blood Metabolites Related to Fiber intake and Type 2 Diabetes, Zheng Wang, Brandilyn A Peters, Bing Yu, et al.
Harnessing RNA Technology to Advance Therapeutic Vaccine Antigens against Chagas Disease, Chiara Mancino, Jeroen Pollet, Assaf Zinger, et al.
Health Care Workers’ Comfort Ratings for Elastomeric Half-Mask Respirators Versus N95® Filtering Facepiece Respirators During the COVID-19 Pandemic, Lisa Pompeii, Janelle Rios, Colleen S Kraft, et al.
Health Equity Innovation in Precision Medicine: Data Stewardship and Agency To Expand Representation in Clinicogenomics, Patrick J Silva, Vasiliki Rahimzadeh, Reid Powell, et al.
Heterozygous MAP3K20 Variants Cause Ectodermal Dysplasia, Craniosynostosis, Sensorineural Hearing Loss, and Limb Anomalies, Daniel Brooks, Elizabeth Burke, Sukyeong Lee, et al.
High Clinical Exome Sequencing Diagnostic Rates and Novel Phenotypic Expansions for Nonisolated Microphthalmia, Anophthalmia, and Coloboma, Bhavana Kunisetty, Bailey A Martin-Giacalone, Xiaonan Zhao, et al.
How Do Parents Decide on Genetic Testing in Pediatrics? A Systematic Review, Hadley Stevens Smith, Bethany Zettler, Casie A Genetti, et al.
How to Design Equitable Digital Health Tools: A Narrative Review of Design Tactics, Case Studies, and Opportunities, Amy Bucher, Beenish M Chaudhry, Jean W Davis, et al.