Center for Medical Ethics and Health Policy Staff Publications

 

The Center for Medical Ethics and Health Policy researches and influences policy on today’s most pressing ethical issues.

The center focuses on conducting cutting-edge multidisciplinary research on perennial and emerging ethical issues arising in clinical practice and in biomedical research in a changing healthcare environment. Our research informs our teaching, clinical practice and contributions to the development of health and science policy at the local, national and international levels.

Our staff is dedicated to creating a shared, sustainable, intellectual environment in which all stakeholders can critically reflect on and respond to ethical challenges in healthcare and biomedical research.

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Submissions from 2025

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Impact of Personalized Risk Scores on Shared Decision Making in Left Ventricular Assist Device Implantation: Findings From a Qualitative Study, Holland Kaplan, Kristin Kostick-Quenet, Benjamin Lang, et al.

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Improving Individualized Rhabdomyosarcoma Prognosis Predictions Using Somatic Molecular Biomarkers, Mark Zobeck, Javed Khan, Rajkumar Venkatramani, et al.

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Incidence and Survival of Children and Adolescents With Wilms Tumor, United States, 2001-2020, Andres F Espinoza, Ekene Onwuka, David A Siegel, et al.

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International Society for Cell & Gene Therapy Expanded Access Working Group Position Paper: Key Considerations to Support Equitable and Ethical Expanded Access to Investigational Cell- and Gene-Based Interventions, Elena Maryamchik, Laertis Ikonomou, Beth E Roxland, et al.

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Investigative Genetic Genealogy Practices Warranting Policy Attention: Results of a Modified Policy Delphi, Christi J Guerrini, Louiza Kalokairinou, Jill O Robinson, et al.

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Joint Analysis of the nPOD-Virus Group Data: The Association of Enterovirus With Type 1 Diabetes Is Supported by Multiple Markers of Infection in Pancreas Tissue, Sarah J Richardson, Teresa Rodriguez-Calvo, Jutta E Laiho, et al.

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Longitudinal Multi-Omics in Alpha-Synuclein Drosophila Model Discriminates Disease- From Age-Associated Pathologies in Parkinson’s Disease, Justin Moore, Timothy Wu, Justin Dhindsa, et al.

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Longitudinal Phage-Bacteria Dynamics in the Early Life Gut Microbiome, Michael J Tisza, Richard E Lloyd, Kristi Hoffman, et al.

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Maternal Loss of Mouse Nlrp2 Alters the Transcriptome and DNA Methylome in Gv Oocytes and Impairs Zygotic Genome Activation in Embryos, Zahra Anvar, Michael D Jochum, Imen Chakchouk, et al.

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Methadone for Critically Ill Patients Under Mechanical Ventilation in the Intensive Care Unit: A Systematic Review, Sérgio Martins Pereira, Megan Abbott, João Francisco Figueiredo Marcondes Ferraz, et al.

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Moving Beyond Simplistic Research Design in Health Professions Education: What a One-Group Pretest-Posttest Design Will Not Prove, S Beth Bierer, Gary Beck Dallaghan, Nicole J Borges, et al.

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Multiscale Modeling of Drug-Induced Liver Injury From Organ to Lobule, Alon Malka-Markovitz, Stelian Camara Dit Pinto, Mohammed Cherkaoui, et al.

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Navigating Your Us Bioscience Career Into the 2030s, Peter J Hotez

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Ocular Phenotyping of Knockout Mice Identifies Genes Associated With Late Adult Retinal Phenotypes, Abraham Hang, Andy Shao, Michael Shea, et al.

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On Minimizing Risk and Harm in the Use of Psychedelics, Jules Evans, Marc Aixalà, Brian T Anderson, et al.

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Osteogenesis Imperfecta and the Family: A Qualitative Analysis of the Experiences of Family and Caregivers, Gianna M Colombo, Andrew D Wiese, Amelia E Mercado, et al.

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Patient-Centric Federated Learning: Automating Meaningful Consent to Health Data Sharing With Smart Contracts, Kristin M Kostick-Quenet, Marcelo Corrales Compagnucci, Mateo Aboy, et al.

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Patient Consent and The Right to Notice and Explanation of AI Systems Used in Health Care, Meghan E Hurley, Benjamin H Lang, Kristin Marie Kostick-Quenet, et al.

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Prediction of Methotrexate Neurotoxicity Using Clinical, Sociodemographic, and Area-Based Information in Children With Acute Lymphoblastic Leukemia, Rachel D Harris, Olga A Taylor, Maria Monica Gramatges, et al.

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Prostaglandin E2 as a Mechanistic Biomarker of Chronic Pancreatitis, Jami L Saloman, Bahiyyah Jefferson, Samuel Han, et al.

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Real-World Use of Classic and Non-Classic Psychedelics in Hispanic/Latino Adults With Obsessive-Compulsive Disorder: International Findings From the LATINO Study, David S Mathai, Jill O Robinson, Kevin Wagner, et al.

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Reframing Stigma in Tourette Syndrome: An Updated Scoping Review, Kelly Pring, Melina Malli, Brandy W Hardy, et al.

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Resilience and Coping: A Qualitative Analysis of Cognitive and Behavioral Factors in Adults With Osteogenesis Imperfecta, Hannah E Cho, Whitney S Shepherd, Gianna M Colombo, et al.

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Revisiting What Constitutes a Neglected Tropical Disease?, Paul J Brindley, Peter J Hotez, and Shaden Kamhawi

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Science Tikkun: A Bioscience Pandemic Framework in a Hebrew Tradition of Global Repair, Peter Hotez