Center for Medical Ethics and Health Policy Staff Publications

 

The Center for Medical Ethics and Health Policy researches and influences policy on today’s most pressing ethical issues.

The center focuses on conducting cutting-edge multidisciplinary research on perennial and emerging ethical issues arising in clinical practice and in biomedical research in a changing healthcare environment. Our research informs our teaching, clinical practice and contributions to the development of health and science policy at the local, national and international levels.

Our staff is dedicated to creating a shared, sustainable, intellectual environment in which all stakeholders can critically reflect on and respond to ethical challenges in healthcare and biomedical research.

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Submissions from 2025

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On Minimizing Risk and Harm in the Use of Psychedelics, Jules Evans, Marc Aixalà, Brian T Anderson, et al.

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Osteogenesis Imperfecta and the Family: A Qualitative Analysis of the Experiences of Family and Caregivers, Gianna M Colombo, Andrew D Wiese, Amelia E Mercado, et al.

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Patient-Centric Federated Learning: Automating Meaningful Consent to Health Data Sharing With Smart Contracts, Kristin M Kostick-Quenet, Marcelo Corrales Compagnucci, Mateo Aboy, et al.

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Patient Consent and The Right to Notice and Explanation of AI Systems Used in Health Care, Meghan E Hurley, Benjamin H Lang, Kristin Marie Kostick-Quenet, et al.

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Prediction of Methotrexate Neurotoxicity Using Clinical, Sociodemographic, and Area-Based Information in Children With Acute Lymphoblastic Leukemia, Rachel D Harris, Olga A Taylor, Maria Monica Gramatges, et al.

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Prevalence and Patterns of Opioid Use in Chronic Pancreatitis, Anna Evans Phillips, Darwin L Conwell, Shuang Li, et al.

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Real-World Use of Classic and Non-Classic Psychedelics in Hispanic/Latino Adults With Obsessive-Compulsive Disorder: International Findings From the LATINO Study, David S Mathai, Jill O Robinson, Kevin Wagner, et al.

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Reframing Stigma in Tourette Syndrome: An Updated Scoping Review, Kelly Pring, Melina Malli, Brandy W Hardy, et al.

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Revisiting What Constitutes a Neglected Tropical Disease?, Paul J Brindley, Peter J Hotez, and Shaden Kamhawi

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Science Tikkun: A Bioscience Pandemic Framework in a Hebrew Tradition of Global Repair, Peter Hotez

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Self-Collection for Cervical Cancer Screening in a Safety-Net Setting: The PRESTIS Randomized Clinical Trial, Jane R Montealegre, Susan G Hilsenbeck, Shaun Bulsara, et al.

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Sequencing-Based Detection of Measles in Wastewater: Texas, January 2025, Sara Javornik Cregeen, Michael J Tisza, Blake Hanson, et al.

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Should Physicians Take the Rap? Normative Analysis of Clinician Perspectives on Responsible Use of 'Black Box' AI Tools, Ben H Lang, Kristin Kostick-Quenet, Jared N Smith, et al.

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Spatial and Seasonal Dynamics of Mosquito Species in Harris County, Texas, Highlight Risk of Arbovirus Introduction and Transmission, Morgan Jibowu, Maximea Vigilant, Andre Luis Costa-da-Silva, et al.

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Survivorship From Pediatric and Adult Brain Tumors: The 2024 Brain Tumor Epidemiology Consortium Meeting Report, Scott L Coven, Roberta McKean-Cowdin, Michael E Scheurer, et al.

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Talking About Suffering in the Intensive Care Unit, Brent M Kious, Judith B Vick, Peter A Ubel, et al.

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US Military Veterans’ Perceived Concordance With Their Providers Regarding Persistent Physical Symptoms Prospectively Predicts Satisfaction With Care and Adherence to Care Plans, L Alison Phillips, Laura M Lesnewich, Katharine Bloeser, et al.

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When Families Bridge the Research-Clinical Divide: An Exploration of Values Regarding Cascade Screening in Genomic Research, Katherine E Bonini, Lauren R Desrosiers-Battu, Ann Katherine M Foreman, et al.

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XBP1s-EDEM2 Prevents the Onset and Development of HFpEF by Ameliorating Cardiac Lipotoxicity, Oveena Fonseka, Rida Raja, Claire Ross, et al.

Submissions from 2024

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Achieving Procedural Parity in Managing Access to Genomic and Related Health Data: A Global Survey of Data Access Committee Members, Jonathan Lawson, Vasiliki Rahimzadeh, Jinyoung Baek, et al.

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A Comprehensive Analysis of Neuroblastoma Incidence, Survival, and Racial and Ethnic Disparities From 2001 to 2019, Kevin Campbell, David A Siegel, Puja J Umaretiya, et al.

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Adaptive, Behavioral, and Emotional Outcomes Following Postoperative Pediatric Cerebellar Mutism Syndrome in Survivors Treated for Medulloblastoma, Kimberly P Raghubar, Andrew M Heitzer, Fatema Malbari, et al.

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"A Double-Edged Sword": A Brief History of Genomic Data Governance and Genetic Researcher Perspectives on Data Sharing, Kayte Spector-Bagdady, Kerry A Ryan, Amy L McGuire, et al.

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Advancing Genomics To Improve Health Equity, Ebony B Madden, Lucia A Hindorff, Vence L Bonham, et al.

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Advancing Genomics to Improve Health Equity, Ebony B Madden, Lucia A Hindorff, Vence L Bonham, et al.