Center for Medical Ethics and Health Policy Staff Publications
The Center for Medical Ethics and Health Policy researches and influences policy on today’s most pressing ethical issues.
The center focuses on conducting cutting-edge multidisciplinary research on perennial and emerging ethical issues arising in clinical practice and in biomedical research in a changing healthcare environment. Our research informs our teaching, clinical practice and contributions to the development of health and science policy at the local, national and international levels.
Our staff is dedicated to creating a shared, sustainable, intellectual environment in which all stakeholders can critically reflect on and respond to ethical challenges in healthcare and biomedical research.
Submissions from 2024
Should Secondary Pharmacogenomic Variants Be Actively Screened and Reported When Diagnostic Genome-Wide Sequencing Is Performed in a Child?, Jan M Friedman, Yvonne Bombard, Bruce Carleton, et al.
Stepped-Care Cognitive Behavioral Therapy in Children on the Autism Spectrum with Co-occurring Anxiety, Eric A Storch, Sophie C Schneider, Sean M Olsen, et al.
Strategies for Healthcare Professionals To Identify and Assist Migrant Children at Risk of Labour Exploitation or Trafficking, Jordan Greenbaum, Melissa I M Torres, Phuong T Nguyen, et al.
Study Protocol for Measuring Stigmatization in Persistent Tic Disorders: Development and Validation of the Tourette Discrimination-Stigmatization Scale, Jaclyn M Martindale, Victor M Ringheanu, Kelly A Pring, et al.
Systemic Neutrophil Gelatinase-Associated Lipocalin Alterations in Chronic Pancreatitis: A Multicenter, Cross-Sectional Study, Kristyn Gumpper-Fedus, Kaylin Chasser, Valentina Pita-Grisanti, et al.
Targeted Variant Assessments of Human Endogenous Retroviral Regions in Whole Genome Sequencing Data Reveal Retroviral Variants Associated with Papillary Thyroid Cancer, Erik Stricker, Erin C Peckham-Gregory, Stephen Y Lai, et al.
Tau Is Required for Glial Lipid Droplet Formation and Resistance to Neuronal Oxidative Stress, Lindsey D Goodman, Isha Ralhan, Xin Li, et al.
The BabySeq Project: A Clinical Trial of Genome Sequencing in a Diverse Cohort of Infants, Hadley Stevens Smith, Bethany Zettler, Casie A Genetti, et al.
The Brain Initiative Data-Sharing Ecosystem: Characteristics, Challenges, Benefits, and Opportunities, Sudhanvan Iyer, Kathryn Maxson Jones, Jill O Robinson, et al.
The Clinical Utility and Diagnostic Implementation of Human Subject Cell Transdifferentiation Followed by RNA Sequencing, Shenglan Li, Sen Zhao, Jefferson C Sinson, et al.
The Determinants of Nonprofit Hospital CEO Compensation, Derek Jenkins, Marah N Short, and Vivian Ho
The Genomic and Evolutionary Landscapes of Anaplastic Thyroid Carcinoma, Peter Y F Zeng, Stephenie D Prokopec, Stephen Y Lai, et al.
The Impact of Clinical Genome Sequencing in a Global Population With Suspected Rare Genetic Disease, Erin Thorpe, Taylor Williams, Chad Shaw, et al.
The Million Veteran Program 1990-1991 Gulf War Era Survey: An Evaluation of Veteran Response, Characteristics, and Representativeness of the Gulf War Era Veteran Population, Kelly M Harrington, Rachel Quaden, Lea Steele, et al.
The Novel Phosphatase NUDT5 Is a Critical Regulator of Triple-Negative Breast Cancer Growth, Jing Qian, Yanxia Ma, William M Tahaney, et al.
The Potential Epidemiologic, Clinical, and Economic Value of a Universal Coronavirus Vaccine: A Modelling Study, Sarah M Bartsch, Kelly J O'Shea, Danielle C John, et al.
The Road to Tailored Adjuvant Chemotherapy for All Four Non-pancreatic Periampullary Cancers: An International Multimethod Cohort Study, Bas A Uijterwijk, Daniël H Lemmers, Michele Ghidini, et al.
The Role of Between-Session Homework in Cognitive-Behavioral Therapy for Comorbid Obsessive-Compulsive Disorder and Autism: A Case Vignette, Molly J Church, Katie H Mangen, Jordan T Stiede, et al.
The Role of Family Accommodation in Child Posttraumatic Stress Symptoms and Functional Impairment in the Context of Cognitive Behavioral Therapy, Ogechi Cynthia Onyeka, Samuel D Spencer, Alison Salloum, et al.
“The Truth Should Not Be Hidden”: Experiences and Recommendations of Individuals Making NPE Discoveries Through Genetic Genealogy Databases, Olivia Schuman, Caroline Beit, Jill Oliver Robinson, et al.
Tractography-Based Modeling Explains Treatment Outcomes in Patients Undergoing Deep Brain Stimulation for Obsessive-Compulsive Disorder, Ron Gadot, Ningfei Li, Ben Shofty, et al.
Trans-Ancestral Genetic Risk Factors for Treatment-Related Type 2 Diabetes Mellitus in Survivors of Childhood Cancer, Cindy Im, Achal Neupane, Jessica L Baedke, et al.
Trust Criteria for Artificial Intelligence in Health: Normative and Epistemic Considerations, Kristin Kostick-Quenet, Benjamin H Lang, Jared Smith, et al.
Tumor-Associated Edema in Children with Kaposi Sarcoma: 14 Years' Experience at Kamuzu Central Hospital, Lilongwe, Malawi, Fatsani Rose Manase, Allison Silverstein, William Kamiyango, et al.
Update on Pediatric Cancer Surveillance Recommendations for Patients with Neurofibromatosis Type 1, Noonan Syndrome, CBL Syndrome, Costello Syndrome, and Related RASopathies, Melissa R Perrino, Anirban Das, Sarah R Scollon, et al.